Bio

Patient engagement in research coordinator at Sant Joan de Déu Children's Hospital. Pedagogue with over 18 years of experience in the field of application of new technologies in different fields (education, marketing, work, health, etc..). Community manager of a health social network site (www.redsocialaptic.org) of patients, associations and professionals about disabilities and rare diseases. SOCIAL SKILLS: • Team spirit and team work. • Good communicative skills. • Emotional intelligence. • Leadership skills. • Knowlegde about different techniques and tools for team work with people in other local positions (teleworking with different professionals). ORGANISATIONAL SKILLS: • High capability of organization and planning. • Ability to organise workshops and training events (experience FOR more than 12 years). • High level of initiative. • Project management by virtual and non-virtual system. TECHNICAL SKILLS: • Knowledge about social investigation (tools and techniques). • Analysis and problems solving. • Innovation and change management. • Motivation about the possibilities of the technology in the social field. • Knowledge of Rare Diseases environment. • Experience about the organization of congresses and seminars. • Writing capability. • Advanced knowledge of the different tools of the web 2.0. Motivation for the continuous learning in this field. • Knowledge of the quality management systems (ISO 9001:2000). OTHER SKILLS: • Professional experience in teleworking. • Self-taught skills for learning.